Tuesday 7 November 2023

 So ... update. Apparently I will live. Today is my last day of antibiotics and my PICC line gets removed tomorrow. Still have issues with my hands. Feels like I'm wearing gloves -can't really feel anything with detail, and anything more than lukewarm water burns. The surface skin on my quads is still numb and my feet also have numb spots.My skin still is still mottled and I look like an [old wrinkled] alien - Zindi comes to mind [Star Trek Enterprise ref]. And I am still losing my hair. [My sister is not sympathetic].

So no idea what happens next. Haven't found a local gp to replace my Owen Sound doctor. I went to went Owen Sound for a "follow-up" but my doctor didn't bother to show up. The doctor who did show up tried to tell me that there was no information about my hospital stays in Trenton or London but when I told her that the OS clinic had confirmed they had received all the info, including blood work results, she backtracked. The best she could tell me was "nerve damage [ ref. hands and fingers] takes about a year to heal and that's as good as it gets", and " very sorry this happened to you but there's not much we can do." She was out of the room before I could stand up.
SO..one more time... do your own research - get a second opinion - whatever it takes to be sure you know what you're being prescribed and why!!
PS the only good thing is my nails are hard as daggers. But it hurts if I stick myself accidentally because my skin is so sensitive! lol
Its lovely here in London - still warm, no snow. Good thing bcuz we couldn't find our winter clothes in the storage unit! Next week we will go to Kingston to finish winterizing the Goose. *sigh*
take care all!

Thursday 5 October 2023

 So it kills me to say this  but we cannot go south this winter. I was prescribed a drug by my doctor that I am severely allergic to ... Terbinafine. It has reduced me to complete skin breakdown. My hands and feet are so swollen I cannot walk .  I was hospitalized in Trenton; sent to Toronto for assessment; moved to London for hospitalization. again.

Doctors have no idea how to leach the 'poison' out of my system. This is a horribly painful condition and so many variables to what is happening to my body, and no guarantee t will get better or not have permanent liver damage.




The boat is put up in Collins Bay for the winter.Luckily we had friends in Ottawa come down to help Rick move the boat from Trenton - 11 hours to Collins Bay.  He has to go down on the 8th of October to strip the boat and get it winterized. Unfortunately, I can't help him.

Monday 25 September 2023

 So not sure what day this is literally, but we are in Trenton. Today is a blustery and we were waiting for tomorrow to move out to False Duck Island to do the crossing but I have developed this excrutiating rash and blisters all over my body. After spending a day at the hospital 3 doctors are of the opinion that they have no clue what it is so they are sending me to Toronto to a dermatologist. How?? "Well don't you have a car?" What part of travelling on a boat don't you understand? MY mouth is dry; water feels like oil; I have no appetite; its too hard to fold clothes bcuz I have no strength. I took a Benadryl yesterday morning and its still coursing through my system. Haven't felt that that stoned in decades!! And I don't like it

So far the weather has been excellent and will stay good to cross the lake as soon as I can be let out so enough whining. I will load some photos when I find the right back up

Monday 28 August 2023

Getting ready again!

 August 28 2023. Who knew it would take this long? In 3 days we move onto the boat and 10 days after that we leave for the sunny south. Sadly we will be leaving family and new friends here. Thats the problem with standing still to long. 

You saw the pics of the new galley [again] . I will post pics of the new rigging when the mast goes up in Castleton, NY. Until then we're a really awkward power boat. 

I was actually amazed that the blog is still active [cuz I wasn't!]. So stay tuned ! Stuff always happens to us!